I tweeted last week that my coral nail polish was in need of change. Particularly to comply with the season! I went for THIS color. OPI Glitzerland. It is perfect for fall. Not too dark. I'll save dark for winter.
I finally got all the piles in my house cleaned up...for the most part from our office demo construction that has been taking place. THIS helps me feel more organized and in control....as long as I don't step into my garage...where I threw all the piles.
THIS weekend Dave + I will be tackling Queen Bee Market projects. The Queen Bee Market is coming up quickly...November 18 & 19th in Del Mar, CA. All the details are here. We are so excited about the Mindy Gledhill concert on Friday night. We've bought our ticket....have you?!
Have we told you THAT we are working on a second booth for the Queen Bee Market? D+A Home will be making it's debut at the market. THAT means we need another booth design. Awwk. We are thinking the simpler the better...but that is hard for us to do. We dream BIG. D+A Home will have recycled and 'made with love' home decor for sale. I'll be moving my lighting and large chalkboards over to that booth. We will also be selling refinished furniture pieces as well as new little furniture pieces that Dave will be creating. And some fun new wall art.
Dave + I were chatting on our way home from the post office last evening. We consider those trips mini dates. We escape without kids, because they hate the post office. We chat the whole time. We started chatting about a certain topic....our dating days and early marriage years and decided THAT we are going to try to do a VLOG for our next Dear Dave + April Tuesday post. Would you like that?
I have been working on a fun new project! THIS is a little picture of an almost finished decorating job that I had for a dear friend....Sarah Lane Studios. It was so fun picking out paint colors, fabric, making drapes and arranging furniture. It was so easy since I was working with a very stylish friend!!
THIS weekend we start a journal for Blake about his toileting needs. It's going to be a lot of work. Checking on him every 15 minutes and recording what we find. But it is necessary and Blake is on board to try to avoid a surgery that none of us hope will be needed. I didn't blog much about our Shriner's Spina Bifida clinic appointment just tweeted that I cried through the appt. Honestly, I couldn't talk about it for two days without crying...so instead I spent time processing the information we received and then called family to share when I felt comfortable talking about it. It still is scary for me but essentially what is probably going to need to happen is three surgeries. I'll explain as briefly as I can....
We went to get our results from the MRI. They look to be fine. It is tricky to determine if a spinal cord is tethered on children with Spina Bifida, but it was determined that while his cord does look tethered on the MRI, based on his lack of symptoms, he probably does not have a significant tether at this time. Phew. I was so relieved.
Then the urologist came in. I had forgotten that we were also getting results from his urodynamic test. That testing tells us how his bladder and bladder neck are functioning. It wasn't good news. I thought we were meeting with the urologist to move forward with one surgery....the ACE Malone, where the doctor re-routes Blake's appendix to an opening in his belly button and connects it to a part of his large intestines. It allows us to do a clean out every morning using a hanging IV bag connected to the opening in his belly button and cleaning him out bowel wise while he sits on the toilet. Usually about a 45 minute procedure everyday. That took some time for me to decide YES this is necessary. I mean who has an extra 45 minutes in the morning on a school day. But we were ready. What I wasn't ready for was the other two surgeries the doctor started to explain were needed.
The first was a bladder augmentation. Essentially the doctor uses other internal parts to form a larger bladder. This is major surgery with a 10-14 day hospital stay. The doctor would do the ACE Malone at the same time while everything is opened up. The second surgery had me crying. Blake leaks most of the day. His bladder neck fails with any pressure from the bladder and urine. Bladder neck reconstruction with diversion is the surgery that would help stop the bladder neck from failing and stop his leaking. It would also not allow us to catheterize Blake through his penis anymore. Forever. His urine output would be diverted to an opening in his lower left region of his body and we would cath through a hole there. Why did I start to cry? Blake is already different from other boys. This surgery would make him even more different. I don't want him to have to be anymore different than he already is...for his own sake. He absolutely doesn't want to change how he caths. It's not fair to him. He has adjusted to being different but at least still using the proper body part to pee from.
I asked the doctor a lot of questions. He completely agreed to my ideas for keeping a journal to really see how much he is leaking and at what point his bladder capacity is at. Which means we will be measuring a lot again. Did I ever tell you that my sweet friend got me a new measuring cup for my birthday after reading my first post about measuring Blake's urine with my kitchen meauring cup? It was funny, but meant so much to me. The doctor does not like doing the bladder neck reconstructions with diversions if he doesn't have to. He said that once Blake has all three of these surgeries he will be a mess in there and no doctor will ever want to go in there again. Boy that brings comfort. At the same time, we are working with the BEST pediatric urologist in the United States. For reals. I'm not just saying that. How lucky are we? LUCKY!
So while this weekend might be a busy one for us...there is one thing THAT really excites me about this weekend. Fall BACK. We get an extra hour of sleep. WOOT! WOOT! Seriously, one of my most favorite days of the whole year. I bet you can guess my least favorite day of the year?!