Many of you have emailed to let me know that you are relying on this here blog to keep you up-to-date on Jason's health. So I will do my best to include that together with my regular posting material. Life.
We took a few steps back yesterday with Jason. He wasn't able to swallow well or communicate clearly. At one point, Jill and I thought maybe he could write what he was trying to say since he was trying to talk whenever he was awake. That didn't work too well. All he wrote was "I can't talk clearly and I don't have the ability to write." And, that took some serious deciphering to figure out only to have Jill and I nod and say, "uhuh....we know!"
The night before though, J and I got in another little chat session where he shared some words of wisdom with me. I was telling J that we recently reconnected with an old high school friend and his wife. I told him that I was instantly drawn to them. Loved their chemistry, their commitment to God and enjoyed the little opportunities I had in the past to chat with them. I told J that at a wedding we were all together at, our friend shared with us that their newest member of their family, a little boy, had just been diagnosed with Downs Syndrome. Dave and I, without hesitating, moved one seat closer to them....to chat more. Since the wedding, we have been wanting to get together with them for dinner and are aiming for a summer BBQ soon. That's when J stopped listening and gave me a little advice. He told me to try not to compare too much and to keep it positive!
What great life advice. Try not to compare. And, keep it positive! Words to live by. I told J that was exactly what I was trying to do with this couple at the wedding. In fact, I felt a little odd telling them that we were excited for them to embark on their journey. A journey that is so precious, raising a special little guy. And, we told them to enjoy the journey. Because really that is what life is all about. "In all living, have much fun and laughter. Life is to be enjoyed, not just endured." is a quote I recently stumbled upon and it reminds me of J's motto through this trial of his....To Endure it Well!
We are enduring this roller coaster of good days and not so good days. Hoping today will be a good day.